The Role of Caregiver
There
really is not a textbook, no blueprint, and no guide on how to be a caregiver.
This is true despite the fact that for Alzheimer’s disease alone, there are
nearly 15 million caregivers and that number will rise dramatically in the next
25 years. Consider all the caregivers for loved ones suffering the different
forms of illness and it is easy to appreciate how important the role of
caregiver is in our society.
It is true
that caregivers are a special group. They are patient, compassionate, caring
people who place the needs of others in front of their own. We all agree that
these are highly admirable qualities, but it is also true that over time such
qualities can be detrimental to one’s own health. It is indeed common for
caregivers to be so focused on their role of caring for another that their own
health and wellbeing gets neglected. We know that at least 33% of caregivers
suffer depression, while others experience sleep disorder, anxiety, lost wages
and reduced time spent at work.
Caregivers
are human beings and it is normal for feelings of guilt, irritability,
frustration, resentment, and even anger to creep into their day as the pressure
and time demands inherent on caregiving increase. Perhaps, a guide or a class
on caregiving could be required prior to our graduation from high school! Not a
bad thought, but I tend to think we are all born with the natural
characteristics of caregiving and that some of us actually express this
beautiful talent, this form of loving-kindness.
I have spent
nearly 30 years caring for those with Alzheimer’s disease and for each person
who struggles with this disease there are two or more family members or friends
who surround their loved one with support and hope. I have watched with great
admiration the sweet and patient care granted by the caregivers and it has been
a constant reminder of the goodness that we humans have.
To all the
caregivers who read this blog, God bless you and know that you represent the
best of humanity. Continue to love, since love is the best medicine, and please
take some time for your own needs.
Dr. Nussbaum
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